Friday, 23 May 2014

Good! It's official! Also, BRB

Not this blog of course! But our recent visitet by the lovely folks at Ofsted. I knew the day they left of course but wasn't allowed to say. So our school finally gained it's 'Good' grade back after five years of satisfactory! It's all bollockyollocks really. Just jumping through hoops.

Now the BRB. NOT be right back, but Bilateral Retinoblastoma

Every day, week, month is usually linked to raising awareness for serious diseases of some sort. Last week, it was the the turn of the cancer that little Harry has. Bloody Bilateral Retinoblastoma. I have blogged about him at length in earlier posts.

Caroline Ahearne, who in my opinion is an absolute comedy genius, has provided the voice over for an online campaign to raise awareness. Do watch.
  CHECT VIDEO

I hope it works. She, herself is currently suffering from lung cancer, because she had RB as a baby. She is a much loved celeb and I wish her well. But her support can only do good for those people who fight to raise funds for research and if just one person reads this, or sees that and then spots it in a baby yet undiagnosed, it's one baby's eyesight, eyes or life that has been saved.

Lisa had to take Harry to be photographed for his blue badges. The photographer was very apologetic as he took and retook the photos. My sister asked what was wrong, as he changed the lenses etc and he commented how odd it was, he kept getting a strange white flash.  She then told him why Harry's eyes were showing as such and she said he was almost in tears. He said he'd never forget Harry and she left gladdened by the fact the minute this photographer picked this up again, he was armed with information that could help.

So just in case you are new here today, you can find Harry's story on my main page.
Here he is ...
Absolutely gorgeous x 
Only the white flash and squint are the outward signs of the deadly cancer he is currently fighting. If you'd like more information, the CHECT  site is a great place to start. 
It's the only charity in the UK solely for this eye cancer. 

Just please, be aware. You could make a difference x 


Thank you

Rachel *proud auntie* Radiostar xx 


2 comments:

  1. Harry is a gorgeous boy,you are right to be proud!
    Jane x

    ReplyDelete
  2. Thank you for this post, Rachel. I wasn't aware of this condition before. Harry is such a lovely little boy. Glad the Ofsted inspection went okay. Hugs, Helen x

    ReplyDelete

Thank You for leaving me your words. I l totally and utterly love reading what your thoughts are and I will try to always reply.